3.1: Data Availability
Post data sets and tools on Data.Gov Other Information:
HHS Data Currently Available for Download - HHS has already posted 117 data sets and tools on Data.Gov since its debut in
May 2009. Check out the inventory of them on our Open Government website (www.hhs.gov/open) or at www.data.gov. These data
sets and tools include: * Hospital-by-hospital quality performance statistics compiled by the Centers for Medicare and Medicaid
Services (CMS) and which can help inform consumer choices regarding where to get care. Also available: similar information
on nursing homes, dialysis facilities, home health agencies * A regularly updated data set representing all technologies available
for licensing from the National Institutes of Health (NIH) and the Food and Drug Administration (FDA), helpful to entrepreneurs
and companies looking to drive innovation * A household cleaning products data set that links over 4,000 consumer brands to
health effects as submitted by manufacturers and which allows scientists and consumers to research products based on chemical
ingredients * Detailed summaries of Medicare expenditures on physician services, which allow the public to understand patterns
of Medicare spending and analyze the types of services being delivered to address the health needs of the Medicare population.
(This data set was first added on January 22 as one of HHS’s new “high value” data sets under the Open Government Directive)
* CDC WONDER, which provides access to online databases, reports, references, and links to external data systems containing
a wide range of highly valuable public health information. Data sets that can be queried online from WONDER are continually
updated and include data sets related to Acquired Immune Deficiency Syndrome (from 1981), births (starting in 1995), cancer
registry statistics (beginning in 1999), mortality data (1979-2006), population estimates (beginning in 1970), sexually transmitted
disease (STD) morbidity (1984-2008), tuberculosis case reports (1993-2007), and vaccine adverse events reports (1990-2010).
CDC WONDER currently hosts 42 searchable online databases, holding over 200 gigabytes of data. In addition, CDC WONDER allows
access to reports, statistics, standard reference tables, and historical guidelines. The wonder.cdc.gov website services over
47 million requests a year. CDC WONDER is widely used by public health programs, researchers, and schools of public health
curricula. CDC WONDER has over 1000 citations as a data source for scientific papers and articles * A downloadable data set
which lists all NIH-funded research grants, contracts, and intramural projects from 2005-2009, abstracts for these projects,
citation information for publications that acknowledged support from any of these projects, and patents reported by investigators
funded by these NIH projects. This data set was published on January 22 as one of HHS’s new “high value” data sets under the
Open Government Directive. NIH had received many public requests for this information to be made available in downloadable
form. Patient advocates are enthusiastic about this dataset because it makes information available on grants and publications
that they had been amassing manually. The biomedical research community is interested in analyzing the data to find collaborators,
develop literature bases, and analyze trends in biomedical research. Policy makers and evaluators are interested in analyzing
research funding, programs supported, and the results of those programs. Venture capitalists and pharmaceutical companies
are interested in analyzing the files to understand the latest trends in federally-funded research * And much more
Indicator(s):
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