- Mission [1]
- The formation of the Muscular Dystrophy Coordinating Committee (MDCC) was mandated by the MD-CARE Act (P.L. 107-84). The purpose
of the MDCC is to coordinate research activities across the National Institutes of Health (NIH) and with other Federal health
programs and activities relating to the various forms of muscular dystrophy, including Duchenne, myotonic, facioscapulohumeral
muscular dystrophy and other forms of muscular dystrophy. As required by law, the function of the MDCC is to develop a plan
for conducting and supporting research and education on muscular dystrophy through the national research institutes and periodically
review and revise the plan. The MDCC has developed a research and education plan for the muscular dystrophies for NIH. This
plan lays out research goals for advancing research and treatments for the muscular dystrophies. The MDCC also has developed
an Action Plan that identified key activities to be undertaken by the broader muscular dystrophy community (governmental organizations,
advocacy groups, and academic and corporate investigators).
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