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There are sometimes a few proposals which were not funded in their entirety, those few being scaled back from their original
level of requested funding (allowable under the program).
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One recommendation pertaining to HC Reform and NBS programs (out of a total of 4) was "not accepted at this time" but is being
considered as part of the current pending recommendations regarding Insurance Coverage of Medical Foods.On 4-13-2011, Committee
recommendations concerning the briefing paper on "Residual Blood Spots" were not ready for adoption. The report was referred
to the ICC for further review and input regarding possible future implementation of the recommendations.On 6-27-2011, 2 recommendations
(out of a total 5) pertaining to screening for sickle cell disease carriers were "not accepted at this time". On 9-2-2011,
the Committee recommended that the Secretary of HHS coordinate newborn screening emergency preparedness activities as defined
in the Newborn Screening Contingency Plan (CONPLAN), within HHS's National Response Framework (NRF).On 9-21-2011, 1 recommendation
to add CCHD Screening to the RUSP was adopted by the Secretary. 4 recommendations for action by the National Institutes of
Health, Centers for Disease Control and Prevention, and HRSA to recognized evidence gaps were also adopted.
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